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Have you ever been bitten by a tick?
Did you get sick?
Were your symptoms severe or mild?
Did you recover quickly or are you still fighting years later?
Did you get the treatment you needed?

Regardless of outcome, your experience matters to us.

Share your story:

Add your story to our annonymous database to help us improve diagnosis and treatment of Lyme and other tick-borne diseases.

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For help with the survey, email surveys@mylyme.ca

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We are reaching out to request your input on a new research partnership to eliminate mis-diagnosis of tick-borne diseases in Canada. A primary component of this initiative is to incorporate lived experiences of people affected by Lyme borreliosis and other tick-borne diseases – a project we are calling ‘myLyme’.

Our core research team bring a broad range of expertise, including internationally recognized research in chronic pain, inflammation, immunology, ecology, genetics, bioinformatics, biomedical engineering, knowledge translation and training, and patient-oriented research. We have been affected personally by tick-borne diseases and bring fresh new perspectives

Lyme and tick-borne diseases are a growing problem that requires all hands on deck, yet the valuable experiences of many patients are too often dismissed or ignored. As a transdisciplinary research group, we recognize the importance of breaking down traditional research silos and creating new connections across diverse islands of expertise. We are excited about the possibility of creating a shared space for diverse approaches to Lyme disease research and advocacy and we hope you will consider joining our conversation.

Our research goals include the following:

  1. Stakeholder education and support, particularly in the context of rapidly changing tick and pathogen distributions.
  2. Unreported and under-appreciated pathogens including Lyme and Lyme-like Borrelia, and potential for simultaneous infections (co-infections)
  3. Improved and coordinated field tracking of all potential pathogens (bacterial, viral, protozoan)
  4. Accurate testing capacity for all pathogens present in an infection including co-infections
  5. Greater understanding of potential long-term effects of vector borne pathogens
  6. Innovative therapeutic targets and treatment options for chronic symptom management
  7. Recognition of disease onset (syndromes) that accompanies vector borne infections
  8. Long-term persistence of tick-borne pathogens following treatment
  9. Pathogens abundance in tick salivary glands vs guts and implications for infection times/rates
  10. Understanding patient genetic, epigenetic and environmental predispositions to different disease symptoms

What do you think?

We would love to hear from you

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